Parkinson’s Disease

April is Parkinson’s Disease Awareness month.  Dzed has Parkinson’s.  He was first diagnosed when he was 58, about 11 years ago.

Today he is participating in a clinical trial: “Exercise and Transcranial Magnetic Stimulation:  Increasing Brain Plasticity in Parkinson’s Disease (An Exploratory and Feasibility Study)

You can find out more about this study at

https://clinicaltrials.gov/ct2/show/NCT02741765?term=exercise+and+parkinson%27s&rank=29

Here’s what’s been involved so far:  On Friday, 4/7 Rick had a pre-screening to make sure he met the basic requirements, cognitively and physically; answering questions, blood pressure, etc. The following Monday was gathering baseline information.  Tuesday through Friday was exercise, 40 minutes on an exercise machine- a cross between an eliptical and stationary bike, and 30 minutes of rTMS.  He has 6 more “treatments” like this, then a post test and follow up in one month.

It’s been fun although somewhat stressful driving into NYC from Long Island on the LIE. Very quickly we got into a routine which includes me prodding him along to keep moving, get dressed and get out of the house because you never know what the traffic is going to be like, HOV lane or not, and, for once, I don’t want to be late. There’s no toll booths at the Midtown tunnel now, so that helps.

The doctors are great. Rick’s team is Dr. “M” from Argentina, and Dr. “H” from Jordan, and Dr. Agarwal from India. Dr. H lets Rick choose the music to listen to while exercising.  So far it has been Merle Haggard, Willie Nelson, and Van Morrison.

Rick doesn’t know if he is in the placebo group or the group receiving treatment.  But we have seen some benefits such as less “freezing” while walking (his brain says walk but his feet are cemented to the ground).  Not all the time, but any improvement is great. One week before this trial began, he fell due to this “freezing” while coming into the house and cracked the back of his head open.  A trip to the emergency room and six staples-He’d never had stitches in his life till then. A very low point. Regardless, exercise is an important aspect to maintaining health and function in PD.

The Annual Unity Walk for Parkinson’s is Saturday April 22, 2017 in Central Park, NYC.  Information is here

http://www.unitywalk.org/eventinfo.php

We’ll be there!

51 Super Bowls

51st Super Bowl with all the bells and whistles as opposed to the first one, Green Bay vs. Kansas City with no frills.  I was a Sophmore at the University of Tennessee in Knoxville for that game. I thought that Kansas City didn’t have a chance, and I was right.  Green Bay controlled the whole game.  I watched it in the dormitory with friends.  Even back then everybody was into it. In 1966 they didn’t have liquor by the drink in Tennessee, and it was a Sunday, so no drinking.  In those days too people were listening to it on their radios-no big parties.

When the AFL merged with the NFL, the NFL had twice as much talent as the AFL and it took three years for the AFL to win the Super Bowl.  That was 1968.  Jets won over Baltimore.  Joe Namath was the Jets QB and Johnny Unitas was the Colts QB.

In the beginning I was a National Conference fan because they had a great deal more talent than the American Conference, and I didn’t like how the AFL bragged that they could beat the NFC-Joe Namath acting like Donald Trump.  I favored Green Bay for quite a time.

1970 Baltimore vs. Dallas and I was stationed in Fort Polk, Louisiana.  The military took all the troops into an aircraft hangar and made us watch the game.  We were sitting on concrete benches, not fun.  Colts won.

Tonight we’re enjoying the game in the comfort of our home with a few friends and some good food.

Just some reflections from a Baby Boomer.

Enjoy!

Dzed

 

 

Hello world!

Hi! Welcome to our site.  We are Dzed and Danielle.  We are new to blogging and hope to have some fun with this.  We want to share our wonderful life with you.  We’ll be blogging about life on Long Island in New York – where we live, our family, gardening, great restaurants, movies-new and old, art, cooking, the beach, life with Parkinson’s Disease, traveling, and so much more!   Thanks for stopping by…….